National Organizations

The Autism Society of America has been improving the lives of all affected by autism for over 50 years and envisions a world where individuals and families living with autism are able to maximize their quality of life, are treated with the highest level of dignity, and live in a society in which their talents and skills are appreciated and valued. We provide advocacy, education, information and referral, support, and community at national, state and local levels through our strong nationwide network of Affiliates. 1-800-328-8476 email: Info@autismsociety.org

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. 888-288-4762 (English) or 888-772-9050 (Spanish) email: Help@autismspeaks.org

The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Through its members, AUCD is a resource for local, state, national, and international agencies, organizations, and policy makers concerned about people living with developmental and other disabilities and their families. 301-588-8252 email: aucdinfo@aucd.org

AFB's programs and services are designed to help improve the lives of people affected by vision loss. They provide resources and support directly to individuals with vision loss and their families, as well as to businesses, employers, and professionals who provide services to blind and visually impaired people. 212-502-7600

ARCH works to assist and promote the development of quality respite and crisis care programs. They help families locate respite and crisis care services in their communities. Their Respite Locator can find respite services that match the individual’s specific needs. 703-256-2084 email: jkagen@archrespite.org

The Arc is the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. They encompass all ages and more than 100 different diagnoses including autism, Down syndrome, Fragile X syndrome, and various other developmental disabilities. They have nearly 700 state and local chapters nationwide. 800-433-5255

The Angelman Syndrome Foundation is the largest non-governmental funder of Angelman syndrome-specific research. Angelman Syndrome Foundation 3015 E. New York Street, Suite A2 #285 Aurora, IL 60504 800-432-6432 email: Info@angelman.org

This organization provide information about hearing loss, provides scholarships and financial awards. It also promotes early detection of hearing loss in infants, publishes books about deafness, and advocates for the rights of children and adults who are hard of hearing and deaf. They have an online community to join, as well as emails that communicate happenings in the community. Alexander Graham Bell Association for the Deaf and Hard of Hearing 3417 Volta Place NW Washington, D.C. 20007 202-337-5221 or TTY 202-337-5221 email: info@agbell.org

f) ADvancing States was founded in 1964 under the name National Association of State Units on Aging (NASUA). In 2019, the association changed its name to ADvancing States. Today, ADvancing States represents the nation’s 56 state and territorial agencies on aging and disabilities and long-term services and supports directors. 202-898-2578

A social network technology platform that gives youth with disabilities, parents, and professionals a safe secure and positive online experience, removes social barriers and reduces the stigma with being different, and promotes independence and better. Ability Online Support Network 114 Sun Row Drive Etobicoke, ON M9P 3J5 416-650-6207 email: information@abilityonline.org